20 Dystonia YouTubers in 2024

Dystonia Medical Research Foundation

Youtube Channel https://www.youtube.com/channel/UCoR0xYIRg.. Play
Dystonia Medical Research Foundation (DMRF) is a 501c3 nonprofit organization dedicated to serving people with all forms of dystonia and their families. We are motivated by an unrelenting drive to find a cure, promote greater public awareness, educate legislators and policy makers, and help support those who are affected.Dystonia is a neurological movement disorder that causes muscles to contract and spasm involuntarily. It affects men, women, and children around the world. Although there is currently no cure, there is hope--and treatment.MORE Email ****@dystonia-foundation.org
YouTube Subscribers 3.7KType Nano Frequency 1 video/week Since Aug 2011 Follow Get Email Contact

Marija Ban

Youtube Channel https://www.youtube.com/channel/UCaaZtSnOd.. Play
Cervical oromandibular facial dystonia
Email ****@researchgate.net
YouTube Subscribers 743Type Nano Frequency 1 video/quarter Since Jun 2011 Follow Get Email Contact

Hope for Dystonia

Youtube Channel https://www.youtube.com/channel/UCXqDS-Kad.. Play
Hope for Dystonia helps you befriend your nervous system so you can get your life back. Learn how to induce neuroplasticity and find peace in the body and the mind through mindfulness, self-compassion, mushrooms, detoxification, and playful techniques to help the brain learn a new way of inhabiting the body.MORE Email ****@hopefordystonia.com
YouTube Subscribers 1.2KType Nano Frequency 1 video/month Since Mar 2023 Follow Get Email Contact

DMRF Canada

Youtube Channel https://www.youtube.com/channel/UCsJiskFOK.. Play
The mission of the Dystonia Medical Research Foundation Canada (DMRFC) is to advance research for more treatments and ultimately a cure for dystonia, a neurological movment disorder. We also work to promote awareness and education; and to support the needs and well being of affected individuals and families. DMRFC is a registered non-profit Canadian charity governed by a volunteer Board of Directors. Visit www.dystoniacanada.org for additional details on the various forms of dystonia, and how you can get support. To contact us email: ****@dystoniacanada...MORE YouTube Subscribers 1.1KType Nano Frequency 1 video/quarter Since Apr 2017 Follow Get Email Contact

Dystonia UK

Youtube Channel https://www.youtube.com/channel/UC7VXhYNRD.. Play
Dystonia UK is the only UK national charity dedicated to helping people living with dystonia, a neurological movement disorder thought to affect around 100,000 people in the UK. We provide information and support through our website, social media channels, magazine, and our network of regional and virtual support groups. We are active members of policy making organisations in order to affect real change in neurological services and we support research to find better treatments for this incurable condition. We also help raise awareness of this little known condition through national...MORE Email ****@dystonia.org.uk
YouTube Subscribers 626Type Nano Frequency 5 videos/year Since Sep 2011 Follow Get Email Contact

Blepharospasm - My journey

Youtube Channel https://www.youtube.com/channel/UCQKhwFCYU.. Play
My experiences with Blepharospasm and Oromandibular dystonia. Here's my journey and experiences with it. If you have any questions regarding Blepharospasm and / or dystonia, kindly post them in the comments. I'll create a video answering your questions. Please remember im not a doctor. But can share my opinionI listened/read the teachings of Hindu sages and Gurus about a human body and it's significance in self healing taking the help of the nature around us, when followed some procedures. (In fact the human body is a part of the mother nature). From their teachings, I experimented...MORE Email ****@dystoniacanada.org
YouTube Subscribers 718Type Nano Frequency 1 video/quarter Since Feb 2022 Follow Get Email Contact

Christine Skalla

Youtube Channel https://www.youtube.com/channel/UCJ7_WKXqj.. Play
Welcome to my page,I have Generalized Dystonia,and various other health issues. My passion is to educate people about Dystonia. I also love Make up and hair. I would like to start putting more videos up.I was a Witch and practiced many forms of Witchcraft, however I grew up Christian and I believe Jesus is calling me back to him,my Chanel will be a mixture of different subjects.. I am an open minded person and am no judgemental.MORE YouTube Subscribers 92Type Nano Frequency 3 videos/quarter Since Sep 2012 Follow Get Email Contact

Dystonia Network of Australia Inc.

Youtube Channel https://www.youtube.com/channel/UC4AmhY93x.. Play
Email ****@dystonia.org.au
YouTube Subscribers 69Type Nano Frequency 1 video/week Since Feb 2017 Follow Get Email Contact

Dystonia Europe

Youtube Channel https://www.youtube.com/channel/UCuh3GrvJz.. Play
We raise awareness, spread information and promote research about the third most common movement disorder, Dystonia.
Email ****@dystonia-europe.org
YouTube Subscribers 2.4KType Nano Frequency 2 videos/year Since Feb 2013 Follow Get Email Contact

Cervical Dystonia

Youtube Channel https://www.youtube.com/channel/UCDLjy49yB.. Play
The National Spasmodic Torticollis Association is a non profit organization dedicated to providing information and support on Spasmodic Torticollis (more commonly referred to as cervical dystonia). Helping patients is our top priority: most of our work involves providing information, answering questions, helping with insurance and Medicare payment problems, and providing hope and moral support. We also work to educate the public and the medical community about Spasmodic Torticollis, advocate for patients' rights, and support research aimed at understanding, treating, and ultimately curing...MORE Email ****@torticollis.org
YouTube Subscribers 1.5KType Nano Since Mar 2009 Follow Get Email Contact

Dystonia Lars-Bo Hilker

Youtube Channel https://www.youtube.com/channel/UCzNQVogXQ.. Play
#dystonia #dystoniasupport #dystoniaawarenessSet yourself up to be Dystonia strong.
Email ****@live.dk
YouTube Subscribers 180Type Nano Since Jul 2012 Follow Get Email Contact

Peace for Dystonia

Youtube Channel https://www.youtube.com/channel/UCERYvYwY1.. Play
Email ****@dystonia-foundation.org
YouTube Subscribers 358Type Nano Since Apr 2018 Follow Get Email Contact

Dystonia & Me

Youtube Channel https://www.youtube.com/channel/UC5DdoS9i6.. Play
Hi everyone, I'm Jordan and I have Generalized Dystonia. We all experience hardship in different capacities. Mine just happens to be the very thing that fascinates me. Currently I am a Neuroscience student with a cellular biology emphasis at The University of Minnesota. I am in the process of learning as much as I can about DBS and gene therapy for Dystonia. My hope is that you will learn along with me and enjoy the process of discovery as much as I do.As I have witnessed moving through university, my symptoms worsen the harder I push myself to discover myself; my disorder. This will not...MORE YouTube Subscribers 242Type Nano Frequency 1 video/year Since Jun 2022 Follow Get Email Contact

Zorana Ivanic

Youtube Channel https://www.youtube.com/channel/UCCRBSB8nu.. Play
I'm Z. Happy to have you here!As a person with a disability (born healthy and chubby little girl but developed generalized dystonia around 7,8 years old), I needed to learn to live with it. With all of the awkward looks and stupid questions from my environment about my strange unwilling muscle contractions and my neurological disorder.I'm here to make that part easier for you. So you can handle your disability with integrity and courage. Here you'll find encouragement, inspiration, coaching and support from someone who actually walks in your shoes.As my dystonia shakes me, I...MORE Email ****@gmail.com
YouTube Subscribers 222Type Nano Frequency 20 videos/year Since Sep 2021 Follow Get Email Contact

I have, but am not, Dystonia 24

Youtube Channel https://www.youtube.com/channel/UC8KYagYMZ.. Play
I have started this channel to raise awareness of Dystonia, but Dystonia 24 in particular. Dystonia 24 is a Genetic (ANO3 Gene) degenerative neurological condition.it started with me as a slight tremor in my right arm at the age of 8, and has progressed slowly until 2021 when my back and neck went into survere spasm, pulling backwards.if you would like to follow my story, please subscribe...if you have similar symptoms or diagnosis, please let me know in the comments.if you are a medical professional who has dealt with dystonia 24, please get in touch in the comments? I would love to get...MORE YouTube Subscribers 76Type Nano Frequency 3 videos/year Since Jan 2023 Follow Get Email Contact

Dystoniac - Living with Cervical Dystonia

Youtube Channel https://www.youtube.com/channel/UCrQreG3Ft.. Play
The experience of this disorder is different for everybody. I'm a 47 year old man living with severe Cervical Dystonia. In this channel I'll share my experience of what it's like to live with this neurological disorder. The experience of this disorder is different for everybody. For me, it causes significant disability and severe pain which has meant I'm unable to work and am significantly limited in what I can do on a day to day basis. Despite a background as a health professional for 25 years I was unfamiliar with this condition Cervical Dystonia (CD) also known as...MORE Email ****@gmail.com
YouTube Subscribers 172Type Nano Frequency 2 videos/year Since Apr 2023 Follow Get Email Contact

Jason Young

Youtube Channel https://www.youtube.com/channel/UCrHLZ-bo2.. Play
A personal channel including some events, struggles, victories, and raw emotions. Life goes on as the battle with Dystonia continues. Much love to all.
YouTube Subscribers 89Type Nano Since Oct 2011 Follow Get Email Contact

Warriors of Dystonia

Youtube Channel https://www.youtube.com/channel/UCEFh6BtXW.. Play
Dystonia is a neurological disorder that causes excessive, involuntary muscle contractions. These muscle contractions result in abnormal muscle movements and body postures, making it difficult for individuals to control their movements. The movements and postures may be painful. My name is Karl and I've had cervical dystonia since 2007. My head pulls to the left 24/7 and is often accompanied with a tremble too. Warriors of Dystoniais a mixed media project that I've launched where people with dystonia or anyone who has someone in their lives effected by dystonia can share their...MORE Email ****@gmail.com
YouTube Subscribers 92Type Nano Since Jan 2020 Follow Get Email Contact

Mike's Dystonia Recovery Journey

Youtube Channel https://www.youtube.com/channel/UCCvrWgAEW.. Play
These are video journal logs to show my dystonia journey to hopefully become asymptomatic. You will see the ups and downs of this movement disorder, but never will give up trying to feel better. I was diagnosed in June of 2015 and didn't start to create these logs until 2018. I had seen over ten different practitioners in two and a half year span. In the spring of 2018, I decided to also try Dr. Joaquin Farias natural method of neuroplasticity.MORE YouTube Subscribers 63Type Nano Frequency 3 videos/year Since Jan 2019 Follow Get Email Contact