20 Dystonia YouTube Channels

Dystonia Medical Research Foundation

Dystonia Medical Research Foundation (DMRF) is a 501c3 nonprofit organization dedicated to serving people with all forms of dystonia and their familie...s. We are motivated by an unrelenting drive to find a cure, promote greater public awareness, educate legislators and policy makers, and help support those who are affected. Dystonia is a neurological movement disorder that causes muscles to contract and spasm involuntarily. It affects men, women, and children around the world. Although there is currently no cure, there is hope--and treatment.more
youtube.com/channel/UCoR0.. Subscribe
3.6K subscribers 1 video / quarter Aug 2011 Get Email Contact

Marija Ban

Cervical oromandibular facial dystonia
youtube.com/channel/UCaaZ.. Subscribe
644 subscribers 1 video / month Jun 2011 Get Email Contact

Blepharospasm - My journey

My experiences with Blepharospasm and Oromandibular dystonia. Here's my journey and experiences with it. If you have any questions regarding Blepharos...pasm and / or dystonia, kindly post them in the comments. I'll create a video answering your questions. Please remember im not a doctor. But can share my opinion I listened/read the teachings of Hindu sages and Gurus about a human body and it's significance in self healing taking the help of the nature around us, when followed some procedures. (In fact the human body is a part of the mother nature). From their teachings, I experimented...more
youtube.com/channel/UCQKh.. Subscribe
519 subscribers 1 video / day Feb 2022 Get Email Contact

Dystonia UK

UK
Dystonia UK is the only UK national charity dedicated to helping people living with dystonia, a neurological movement disorder thought to affect aroun...d 100,000 people in the UK. We provide information and support through our website, social media channels, magazine, and our network of regional and virtual support groups. We are active members of policy making organisations in order to affect real change in neurological services and we support research to find better treatments for this incurable condition. We also help raise awareness of this little known condition through national...more
youtube.com/channel/UC7VX.. Subscribe
551 subscribers 2 videos / quarter Sep 2011 Get Email Contact

Zorana Ivanic

Serbia
I'm Z. Happy to have you here! As a person with a disability (born healthy and chubby little girl but developed generalized dystonia around 7,8 y...ears old), I needed to learn to live with it. With all of the awkward looks and stupid questions from my environment about my strange unwilling muscle contractions and my neurological disorder. I'm here to make that part easier for you. So you can handle your disability with integrity and courage. Here you'll find encouragement, inspiration, coaching and support from someone who actually walks in your shoes. As my dystonia shakes me, I...more
youtube.com/channel/UCCRB.. Subscribe
177 subscribers 3 videos / week Sep 2021 Get Email Contact

Dystonia & Me

US
Hi everyone, I'm Jordan and I have Generalized Dystonia. We all experience hardship in different capacities. Mine just happens to be the very thing ...that fascinates me. Currently I am a Neuroscience student with a cellular biology emphasis at The University of Minnesota. I am in the process of learning as much as I can about DBS and gene therapy for Dystonia. My hope is that you will learn along with me and enjoy the process of discovery as much as I do. As I have witnessed moving through university, my symptoms worsen the harder I push myself to discover myself; my disorder. This will not...more
youtube.com/channel/UC5Dd.. Subscribe
216 subscribers 1 video / quarter Jun 2022 Get Email Contact

Dystoniac - Living with Cervical Dystonia

Australia
The experience of this disorder is different for everybody. I'm a 47 year old man living with severe Cervical Dystonia. In this channel I'll s...hare my experience of what it's like to live with this neurological disorder. The experience of this disorder is different for everybody. For me, it causes significant disability and severe pain which has meant I'm unable to work and am significantly limited in what I can do on a day to day basis. Despite a background as a health professional for 25 years I was unfamiliar with this condition Cervical Dystonia (CD) also known as...more
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90 subscribers 8 videos / year Apr 2023 Get Email Contact

I have, but am not, Dystonia 24

I have started this channel to raise awareness of Dystonia, but Dystonia 24 in particular. Dystonia 24 is a Genetic (ANO3 Gene) degenerative neurologi...cal condition. it started with me as a slight tremor in my right arm at the age of 8, and has progressed slowly until 2021 when my back and neck went into survere spasm, pulling backwards. if you would like to follow my story, please subscribe... if you have similar symptoms or diagnosis, please let me know in the comments. if you are a medical professional who has dealt with dystonia 24, please get in touch in the comments? I would love to get...more
youtube.com/channel/UC8KY.. Subscribe
40 subscribers 12 videos / year Jan 2023 Get Email Contact

Mike's Dystonia Recovery Journey

These are video journal logs to show my dystonia journey to hopefully become asymptomatic. You will see the ups and downs of this movement disorder, ...but never will give up trying to feel better. I was diagnosed in June of 2015 and didn't start to create these logs until 2018. I had seen over ten different practitioners in two and a half year span. In the spring of 2018, I decided to also try Dr. Joaquin Farias natural method of neuroplasticity.more
youtube.com/channel/UCCvr.. Subscribe
55 subscribers 1 video / quarter Jan 2019 Get Email Contact

Dystonia Europe

Belgium
We raise awareness, spread information and promote research about the third most common movement disorder, Dystonia.
youtube.com/channel/UCuh3.. Subscribe
2.2K subscribers 16 videos / year Feb 2013 Get Email Contact

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