40 Muscular Dystrophy YouTube Channels

Oluchi Sonia Okwenna aka Queenideas

Hi, I'm Oluchi Sonia Okwenna aka Queenideas, a Social Media and Content Specialist, the founder and host for the Show, With Queenideas, the CEO of Snapdragon Consulting Ltd, and an aspiring Tedx Speaker living with physical disabilities as a result of Muscular Dystrophy. Here, I share my life above Muscular Dystrophy, my Social Media and Digital Marketing Expertise/Experience running my Company/Brand from home and my Show, With Queenideas. I'm on a mission to help young striving Nigerian Girls who are internet savvy make money and progress using their Talent and Social Media so that...
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YouTube Subscribers 120K Frequency 6 videos / month Since May 2016 more » Get Email Contact

Wonder Girl Carmela

Carmela has a very rare progressive muscle wasting condition called LMNA-Congenital Muscular Dystrophy but refuses to let it stop her fighting to stay mobile and live a long life. With pure grit, determination and the help of specialist equipment and mobility aids, she strives to succeed and achieve goals she sets herself and remains positive through the tough times with her 'Can Do' Attitude. Carmela loves to help others using her great coaching skills teaching others like her to fight to stay strong and fit and appreciates she has to work harder than others to achieve so likes to...
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YouTube Subscribers 21.8K Frequency 2 videos / week Since Jan 2016 more » Get Email Contact

MDA

About Muscular Dystrophy Association Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA's mission is to empower the people we serve to live longer, more independent lives. To learn more visit mda.org and follow us on social media @MDAorg
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YouTube Subscribers 19.7K Frequency 6 videos / week Since Feb 2007 more » Get Email Contact

Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne muscular dystrophy. We take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options. Only this comprehensive approach will lead to the day that 100% of those diagnosed can turn to a treatment that will lead to the end of Duchenne muscular dystrophy.
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YouTube Subscribers 6.9K Frequency 7 videos / quarter Since Aug 2007 more » Get Email Contact

FSHD Society

Our Promise As long as we are here, no patient need ever face this disease alone. And with generous donations from patients, families, friends, major donors, and sponsors, the FSHD Society will keep working to accelerate research leading to treatments by 2025 and eventually a cure. Our Vision: A world free of the suffering caused by FSH Muscular Dystrophy (FSHD) Our Mission: Find treatments and a cure for FSHD while empowering our families Our Core Values: Research | Community | Urgency The FSHD Society is the world's largest research-focused patient organization for facioscapulohumeral...
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YouTube Subscribers 2.6K Frequency 1 video / week Since Oct 2008 more » Get Email Contact

Ollie and Shazz

Meet the dynamic duo Ollie and Shazz. Ollie is a 13 year old boy from Sydney, who at 10 weeks, was diagnosed with a genetic disorder called Duchenne Muscular Dystrophy (DMD). 'Kiwi' Shazz is Ollie's support worker and friend. They have fun making videos sharing Ollie's journey and experiences as he navigates life with DMD, and hope the videos give you a laugh! Check out their Instagram channel ollieandshazz DMD is a condition that causes muscles to weaken and break down, leading to progressive difficulty with walking and general mobility. It can result in a young boy being completely...
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YouTube Subscribers 2.3K Frequency 2 videos / week Since Apr 2010 more » Get Email Contact

PerseusYo

My name is Justin I am 28 and I have Duchenne Muscular Dystrophy (DMD) which is a genetic disorder characterized by progressive muscle degeneration and weakness. This means I cannot walk, lift my arms, or even straighten my legs anymore. I play games almost everyday because If I don't I feel like I am inactive in a way. Since I cannot really do much I think it is the best way to keep my mind active. Despite being disabled I push through and keep being as positive as I can and I never let the fact of me being disabled depress me or keep me down. previous sub goal 50 ✔ (12/13/2013) 100...
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YouTube Subscribers 1.8K Frequency 1 video / day Since Sep 2013 more » Get Email Contact

CureDuchenneMD

CureDuchenne is a national nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Duchenne is a progressive muscle-wasting disease that impacts 1 in 3,500 boys. Boys are usually diagnosed before age 5, in a wheelchair by 12 and most don't survive their mid-20s. Currently, there are no approved treatments or cure for Duchenne. CureDuchenne funds promising research to find a cure for Duchenne. For more information, visit www.CureDuchenne.org
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YouTube Subscribers 2.5K Frequency 2 videos / month Since Oct 2009 more » Get Email Contact

Muscular Dystrophy UK

Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions. Founded in 1959, we have been leading the fight against muscle-wasting conditions since then. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 70,000 children and adults in the UK.
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YouTube Subscribers 2.4K Frequency 1 video / day Since Oct 2007 more » Get Email Contact

Myotonic Dystrophy Foundation

The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy (DM) disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, the Myotonic Dystrophy Foundation is often the only resource they are able to locate, and MDF has provided assistance and support for people living with DM in more than 80 countries around the world. MDF is a non-profit, 501(c)(3) organization based in Oakland,...
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YouTube Subscribers 1.3K Frequency 17 videos / quarter Since Oct 2013 more » Get Email Contact

CureCMD

Cure CMD is your one-stop Congenital Musclar Dystrophy information resource. It offers perspectives from both passionate individuals like you and resarchers and clinicians who are at the forefront of CMD research. Cure CMD began as a group of families and loved ones dedicated to raising funds and pushing for much needed research in this under served area of neuromuscular disroders. Since 2008, we have built the foundation necessary to eliminate roadblocks to treatments for CMD. Though no therapies or cures currently exist for congenital muscular dystrophy we are closer to finding...
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YouTube Subscribers 2.5K Frequency 1 video / month Since Mar 2009 more » Get Email Contact

James Parkin - living life, DMD style!!

Hi my name is James Parkin, i am 29 years old and i have Duchenne Muscular Dystrophy (DMD) Duchenne Muscular Dystrophy is a muscle wasting condition, so over a period of time my muscles weaken over time. It is 100% fatal with no cure. The average life expectancy is about mid 20's. I started walking late. I was always last in the egg and spoon race at school. I lost the ability to walk aged 10. Couldn't stand a bit later. Was introduced to a ventilator at 15 and two years later was wearing it all night every night. When I was 18 I lost Thomas. My brother. He was 16 and had exactly...
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YouTube Subscribers 802 Frequency 1 video / week Since Oct 2021 more » Get Email Contact

MDC / DMC

Muscular Dystrophy Canada's mission is to enhance the lives of those affected by neuromuscular disorders by continually working to provide ongoing support and resources while relentlessly searching for a cure through well-funded research.
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YouTube Subscribers 1.1K Frequency 4 videos / quarter Since Aug 2009 more » Get Email Contact

DefeatDuchenne

One in every 5,000 boys is born with Duchenne muscular dystrophy, the most common fatal form of muscular dystrophy. The disease is relentless. It slowly weakens the body's muscles, deteriorating function of vital organs and ultimately - shortens their life. Although there are medical treatments that may help slow its progression, there is currently no cure. Defeat Duchenne Canada is the country's only national charity dedicated to ending Duchenne muscular dystrophy. We have provided leadership in research, advocacy, and support since 1995. We'll continue until a cure is found to ensure...
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YouTube Subscribers 367 Frequency 8 videos / quarter Since Sep 2007 more » Get Email Contact

FSHDGlobalResearch

The FSHD Global Research Foundation is an Australian not-for-profit organisation dedicated to finding a treatment and cure for Facioscapulohumeral Dystrophy (FSHD). The Foundation is currently funding a number of groundbreaking research projects around the world (with a particular encouragement of Australian based research) aimed at achieving these goals. FSHD is one of the most common forms of muscular dystrophy and genetic hereditary diseases seen in skeletal muscle. Its prevalence varies from country to country depending on medical diagnostic competence. A 2010 report by Orphanet entitled...
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YouTube Subscribers 731 Frequency 2 videos / quarter Since Sep 2012 more » Get Email Contact

Muscular Dystrophy Awareness Challenge

I'm Mike Riley from Cape Cod, MA and I have Duchenne Muscular Dystrophy. After being inspired by the ice bucket challenge, which has raised millions for ALS, I created my challenge to raise money/awareness for Muscular Dystrophy, which is a group of diseases that cause progressive weakness and loss of muscle mass. People who have my form of MD will eventually lose the use of their arms and legs and have trouble breathing and swallowing. It affects 1 in every 3,000 to 6,000 males born in the US every year. There is no cure. The challenge is very simple. All you have to do is put your feet...
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YouTube Subscribers 541 Frequency 5 videos / quarter Since Oct 2008 more » Get Email Contact

The Muscle Help Foundation

Prepare to be inspired! We are a small multi-award winning, family-centred charity, working tirelessly, now delivering virtual experiences in the UK (as a direct result of COVID-19) called Muscle Dreams for children & young people (8-28yrs) with the muscle wasting disease, Muscular Dystrophy (MD). These moments-in-time change lives, they uplift, they give hope. Our social currency is underpinned by the idea that an empowering experience, if executed brilliantly, can be transformative for both a young person and his/her family. A small but mighty charity, that's raised over £1.1 million...
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YouTube Subscribers 186 Frequency 1 video / month Since Aug 2010 more » Get Email Contact

Family, Friends and Duchenne

'It's not what we have in our lives, but rather who, that matters.' -unknown Creating opportunities for friendships, support and social inclusion for families and individuals with Duchenne Muscular Dystrophy. You can also find us on Facebook, Instagram, LinkedIn, Discord and Twitch.
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YouTube Subscribers 257 Frequency 1 video / month Since Mar 2021 more » Get Email Contact

The Speak Foundation Non-profit Organization

Founded in 2008, The Speak Foundation was the first patient led nonprofit organization located in the USA which focuses on being a voice for all individuals living with Limb Girdle Muscular Dystrophy and other rare forms of muscular dystrophy. We also organize the International LGMD Conference and publish the professional magazine LGMD News Magazine. To find out more about how we are making a difference in LGMD and to receive a free subscription to LGMD News Magazine, visit our flagship website www.thespeakfoundation.com.
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YouTube Subscribers 487 Frequency 8 videos / quarter Since Mar 2016 more » Get Email Contact

TheParaplegicShootist

I have muscular dystrophy and I'm also paraplegic do to a back surgery going wrong when I was 13, i had the best doctor in the state and I was his very first mistake ever! My videos will be mainly shooting, hunting, some gear reviews, inspiration to others and firearm reviews because I love and support 2A all the way and I 100% believe in our constitutional rights! I want to show people that do have disabilities and that are handicapped that just because you are you still can do what you love because god will allow it as long as you fight for it and never give up no matter how down or dark...
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YouTube Subscribers 214 Frequency 1 video / quarter Since Dec 2022 more » Get Email Contact

Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
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YouTube Subscribers 94 Frequency 1 video / week Since Jun 2013 more » Get Email Contact

MyFSHD

MyFSHD -- based in Reno, Nevada, USA -- is a source for education about all-things-FSHD. Scientists Drs. Peter and Takako Jones, whose sole focus is facioscapulohumeral muscular dystrophy, other scientific contributors, and ambassadors across the globe who battle the disease, aim to help the worldwide FSHD patient community find answers about their FSHD status through education, advocacy and saliva-based FSHD research testing accessible worldwide, at no cost to individuals. Visit MyFSHD.org. Tune in to MyFSHD Podcast with Dr. Peter Jones and guests (Spotify, Apple, Google, Amazon Music,...
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YouTube Subscribers 206 Frequency 1 video / year Since Sep 2020 more » Get Email Contact

Emilka's Way

I was healthy and they told me I 'wasn't', so I've changed all I ever knew. Muscular Dystrophy Limb Girdle 2b Instagram: eemiilka
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YouTube Subscribers 215 Frequency 1 video / quarter Since May 2021 more » Get Email Contact

Muscular Dystrophy Queensland

Our vision: That all Queenslanders who live with muscular dystrophy and other neuromuscular conditions are empowered to make the most of opportunities, maximise their potential and live fulfilling lives.
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YouTube Subscribers 85 Frequency 2 videos / year Since Sep 2011 more » Get Email Contact

Muscular Dystrophy NSW

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YouTube Subscribers 60 Frequency 1 video / month Since May 2016 more » Get Email Contact

Destroy Duchenne

The official Youtube of the Destroy Duchenne organization.Our mission is: to bring awareness, educate and ultimately cure Duchenne Muscular Dystrophy to save young lives.
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YouTube Subscribers 119 Frequency 1 video / year Since Jul 2017 more » Get Email Contact

Muscular Dystrophy Foundation of South Africa

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YouTube Subscribers 87 Frequency 1 video / quarter Since Feb 2022 more » Get Email Contact

Muscular Dystrophy Specialist

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YouTube Subscribers 79 Frequency 1 video / quarter Since Jan 2016 more » Get Email Contact

Muscular Dystrophy Ireland

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YouTube Subscribers 19 Frequency 1 video / month Since Sep 2013 more » Get Email Contact

Muscular Dystrophy Family Foundation

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YouTube Subscribers 11 Frequency 1 video / week Since Nov 2011 more » Get Email Contact